{"id":2119,"date":"2025-06-12T15:56:05","date_gmt":"2025-06-12T13:56:05","guid":{"rendered":"https:\/\/okuvision.de\/news\/mythen-rp\/"},"modified":"2026-05-03T14:23:25","modified_gmt":"2026-05-03T12:23:25","slug":"myths-rp","status":"publish","type":"post","link":"https:\/\/okuvision.de\/en\/news\/myths-rp\/","title":{"rendered":"RP: Myth Check \u2013 What’s Really True"},"content":{"rendered":"

[vc_row row_height_percent=”0″ override_padding=”yes” h_padding=”0″ top_padding=”0″ bottom_padding=”0″ back_color=”color-206913″ overlay_alpha=”50″ gutter_size=”3″ column_width_percent=”100″ shift_y=”0″ z_index=”0″ content_parallax=”0″ uncode_shortcode_id=”100151″ back_color_type=”uncode-palette”][vc_column width=”1\/1″]\n

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\n \n Lesedauer ca. 4 Min. <\/span>\n \n 12. June 2025 <\/span>\n <\/div>\n \n

\n Myths & Facts about Retinitis pigmentosa <\/h1>\n \n
\n \n <\/div>\n \n
\n Therapy & Application<\/span>\n Research & Evidence<\/span>\n <\/div>\n \n <\/div>\n \n \n
\n \"RP: <\/div>\n <\/div>\n \n <\/div>\n \n<\/div>\n\n\n[\/vc_column][\/vc_row][vc_row row_height_percent=”0″ override_padding=”yes” h_padding=”2″ top_padding=”3″ bottom_padding=”3″ overlay_alpha=”50″ gutter_size=”3″ column_width_percent=”100″ shift_y=”0″ z_index=”0″ content_parallax=”0″ uncode_shortcode_id=”959669″ row_name=”Einleitung”][vc_column column_width_percent=”70″ gutter_size=”3″ overlay_alpha=”50″ shift_x=”0″ shift_y=”0″ shift_y_down=”0″ z_index=”0″ medium_width=”0″ mobile_width=”0″ width=”1\/1″ uncode_shortcode_id=”705359″][vc_column_text uncode_shortcode_id=”155709″]Many statements about Retinitis pigmentosa (RP) sound frightening \u2013 but are not always accurate. In this article, we separate myths from facts: What is truly correct, what is outdated, and where is it worth taking a closer look?[\/vc_column_text][vc_custom_heading heading_semantic=”h3″ text_size=”h3″ uncode_shortcode_id=”115833″]”RP quickly leads to blindness.”[\/vc_custom_heading][vc_column_text uncode_shortcode_id=”154613″]RP progresses very individually. The course and speed differ depending on genetics and initial findings. Regular check-ups help to detect changes early and implement relevant everyday adjustments in a targeted manner.[\/vc_column_text][vc_custom_heading heading_semantic=”h3″ text_size=”h3″ uncode_shortcode_id=”179259″]”There is a cure today.”[\/vc_custom_heading][vc_column_text uncode_shortcode_id=”130947″]Currently, RP is considered incurable. Research into gene therapies, cell replacement, and optogenetics is making progress, but therapies are not yet widely available. Care therefore aims at preserving function and independence.[\/vc_column_text][vc_custom_heading heading_semantic=”h3″ text_size=”h3″ uncode_shortcode_id=”188270″]”There’s nothing you can do.”[\/vc_custom_heading][vc_column_text uncode_shortcode_id=”151203″]Much can be actively managed: lighting, contrasts, orientation aids, digital tools, rehabilitation services, peer support \u2013 and, if appropriate, medically prescribed TES to slow down functional loss.[\/vc_column_text][vc_custom_heading heading_semantic=”h3″ text_size=”h3″ uncode_shortcode_id=”178525″]”TES cures RP.”[\/vc_custom_heading][vc_column_text uncode_shortcode_id=”190365″]According to clinical data, TES (transcorneal electrical stimulation) can slow down the decline of the visual field; however, it does not cure RP. The goal is to preserve vision longer. Therapy decisions belong in specialized practice. Read more about the current therapy and study situation.<\/a>[\/vc_column_text][vc_custom_heading heading_semantic=”h3″ text_size=”h3″ uncode_shortcode_id=”172394″]”All RP progressions are the same.”[\/vc_custom_heading][vc_column_text uncode_shortcode_id=”205760″]There are many genetic variants and different ages of onset, co-morbidities (e.g., Usher syndrome), and daily life requirements. Therefore, care is always individualized. <\/p>\n

What affected individuals can specifically do<\/p>\n

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  • Regular check-ups: Understand findings and document progression<\/li>\n
  • Adapt daily life: Control light\/glare, increase contrasts, train orientation<\/li>\n
  • Utilize care: Rehabilitation, aids, self-help \u2013 and discuss therapy options like TES if suitable<\/li>\n
  • Activate network: Family, school\/work, associations \u2013 involve support<\/li>\n<\/ul>\n

    [\/vc_column_text][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"

    Concise, clear, evidence-based: We dispel false expectations and show what is possible today.<\/p>\n","protected":false},"author":10,"featured_media":856,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[176,180],"tags":[],"class_list":["post-2119","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-therapy-application","category-research-evidence"],"yoast_head":"\nMyths & Facts about Retinitis pigmentosa (RP)<\/title>\n<meta name=\"description\" content=\"What's true \u2013 what's not? RP is genetically determined, progresses individually, and is currently incurable. What therapies like TES can achieve (and what they cannot).\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/okuvision.de\/en\/news\/myths-rp\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"RP: Myth Check \u2013 What's Really True\" \/>\n<meta property=\"og:description\" content=\"What's true \u2013 what's not? RP is genetically determined, progresses individually, and is currently incurable. 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