{"id":2139,"date":"2025-12-01T14:50:49","date_gmt":"2025-12-01T13:50:49","guid":{"rendered":"https:\/\/okuvision.de\/news\/erfahrungsbericht-rp-ines\/"},"modified":"2026-05-21T13:47:42","modified_gmt":"2026-05-21T11:47:42","slug":"experience-report-rp-ines","status":"publish","type":"post","link":"https:\/\/okuvision.de\/en\/news\/experience-report-rp-ines\/","title":{"rendered":"Maintaining quality of life"},"content":{"rendered":"

[vc_row row_height_percent=”0″ override_padding=”yes” h_padding=”0″ top_padding=”0″ bottom_padding=”0″ back_color=”color-206913″ overlay_alpha=”50″ gutter_size=”3″ column_width_percent=”100″ shift_y=”0″ z_index=”0″ content_parallax=”0″ uncode_shortcode_id=”100151″ back_color_type=”uncode-palette”][vc_column width=”1\/1″]\n

\n \n \n
<\/div>\n \n \n
\n \n
\n
\n \n
\n \n Lesedauer ca. 4 Min. <\/span>\n \n 1. December 2025 <\/span>\n <\/div>\n \n

\n Retinitis pigmentosa: Maintaining quality of life is the guiding principle <\/h1>\n \n
\n \n <\/div>\n \n
\n User Portraits<\/span>\n <\/div>\n \n <\/div>\n \n \n
\n \"Erfahrungsbericht <\/div>\n <\/div>\n \n <\/div>\n \n<\/div>\n\n\n[\/vc_column][\/vc_row][vc_row row_height_percent=”0″ override_padding=”yes” h_padding=”2″ top_padding=”3″ bottom_padding=”3″ overlay_alpha=”50″ gutter_size=”3″ column_width_percent=”100″ shift_y=”0″ z_index=”0″ content_parallax=”0″ uncode_shortcode_id=”959669″ row_name=”Einleitung”][vc_column column_width_percent=”70″ gutter_size=”3″ overlay_alpha=”50″ shift_x=”0″ shift_y=”0″ shift_y_down=”0″ z_index=”0″ medium_width=”0″ mobile_width=”0″ width=”1\/1″ uncode_shortcode_id=”705359″][vc_column_text uncode_shortcode_id=”109990″]Staying active despite everyday limitations and slowing the progression of the disease \u2013 for Ines Wolf, this has been the right way to cope with the condition since she was young.[\/vc_column_text][vc_custom_heading heading_semantic=”h3″ text_size=”h3″ uncode_shortcode_id=”135262″]Diagnosis: Retinitis pigmentosa[\/vc_custom_heading][vc_column_text uncode_shortcode_id=”187991″]Ines Wolf was 13 years old when she was diagnosed with retinitis pigmentosa. \u201cBack then, and up until three or four years ago, I did not notice any obvious changes\u2014perhaps also because the disease developed so gradually for me. The first limitations then appeared in the classic way: I could see worse and worse in the dark. Then I also experienced increasingly larger losses in my visual field,\u201d says the now 27-year-old. She was in the middle of studying biology and had already taken part in a clinical TES study in T\u00fcbingen when she faced the question of what to do next. <\/p>\n

\u201cIn the study, I coped very well with using TES, and thanks to my studies I had a fairly good insight into the background of the treatment. That is why I definitely wanted to continue it,\u201d says Ines Wolf. She has since earned a bachelor\u2019s degree in biology and is studying medicine. \u201cThere were a few longer trips, including a stay abroad in Australia, and stressful phases during my studies when I paused the treatment,\u201d the prospective doctor admits. Apart from that, she has been using TES for seven years.[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column width=”1\/1″][vc_custom_heading uncode_shortcode_id=”761184″]\u201cSwimming, climbing, playing volleyball\u2014I am so glad I can still do all of that and want to maintain this quality of life for as long as possible. That is why I am sticking with TES.\u201d[\/vc_custom_heading][vc_column_text uncode_shortcode_id=”156184″]Ines Wolf, RP-patient[\/vc_column_text][\/vc_column][\/vc_row][vc_row row_height_percent=”0″ override_padding=”yes” h_padding=”2″ top_padding=”3″ bottom_padding=”3″ overlay_alpha=”50″ gutter_size=”3″ column_width_percent=”100″ shift_y=”0″ z_index=”0″ content_parallax=”0″ uncode_shortcode_id=”959669″ row_name=”Einleitung”][vc_column column_width_percent=”70″ gutter_size=”3″ overlay_alpha=”50″ shift_x=”0″ shift_y=”0″ shift_y_down=”0″ z_index=”0″ medium_width=”0″ mobile_width=”0″ width=”1\/1″ uncode_shortcode_id=”705359″][vc_column_text uncode_shortcode_id=”199323″]Once a week, she uses TES for 30 minutes. \u201cThe glasses of course have to be properly adjusted, and that sometimes needs to be corrected. Everything else is super easy. When it is running, it is a relaxing thing. I usually lie down and do autogenic training during that time, talk on the phone via headset, or listen to an audiobook. It has even happened that I fell asleep during the stimulation and only woke up again when the final beep sounded.\u201d[\/vc_column_text][vc_custom_heading heading_semantic=”h3″ text_size=”h3″ uncode_shortcode_id=”130539″]Managing everyday life with RP[\/vc_custom_heading][vc_column_text uncode_shortcode_id=”145544″]Ines Wolf is always aware of her condition, but she has found a pragmatic way to deal with it: \u201cBasically, I find it harder to have to stop doing something you are used to than not to do it in the first place. That is why I never got a driving licence. Unfortunately, I had to stop cycling six years ago.\u201d However, since her boyfriend gave her a tandem, she can get around on two wheels again. If one thing does not (or no longer) work, perhaps something else will\u2014this attitude shapes Ines Wolf\u2019s path. Professionally, some specialties such as surgery are closed to her, but she can imagine her professional future as a general practitioner, for example in a group practice. \u201cI am confident that it will work out, but I am also open to other options. After all, there are so many possibilities with a medical degree.\u201d <\/p>\n

Ines Wolf is doing what she can to counter progressive blindness. And for her, that includes TES. \u201cTo me, the method is plausible and makes sense. And the study results to date are promising. I am not fixated on things staying the same, but I do believe that my condition is progressing significantly more slowly thanks to the treatment,\u201d she is convinced. Her greatest wish: \u201cI very much hope that I will still be able to see reasonably well when the topic of family and children becomes urgent.\u201d[\/vc_column_text][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"

Ines has relied on TES for years \u2013 active in her studies, sport, and everyday life.<\/p>\n","protected":false},"author":10,"featured_media":808,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[179],"tags":[],"class_list":["post-2139","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-user-portraits"],"yoast_head":"\nMaintaining quality of life \u2013 Ines Wolf on RP & TES<\/title>\n<meta name=\"description\" content=\"Ines Wolf (27) has relied on TES for years. She talks about her studies, everyday life, sport, and her personal RP strategy.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/okuvision.de\/en\/news\/experience-report-rp-ines\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Maintaining quality of life\" \/>\n<meta property=\"og:description\" content=\"Ines Wolf (27) has relied on TES for years. She talks about her studies, everyday life, sport, and her personal RP strategy.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/okuvision.de\/en\/news\/experience-report-rp-ines\/\" \/>\n<meta property=\"og:site_name\" content=\"Okuvision\" \/>\n<meta property=\"article:published_time\" content=\"2025-12-01T13:50:49+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-05-21T11:47:42+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/okuvision.de\/wp-content\/uploads\/2025\/12\/AdobeStock_252852364_sw.webp\" \/>\n\t<meta property=\"og:image:width\" content=\"1800\" \/>\n\t<meta property=\"og:image:height\" content=\"1195\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/webp\" \/>\n<meta name=\"author\" content=\"Melanie Broll\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Melanie Broll\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/okuvision.de\\\/en\\\/news\\\/experience-report-rp-ines\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/okuvision.de\\\/en\\\/news\\\/experience-report-rp-ines\\\/\"},\"author\":{\"name\":\"Melanie Broll\",\"@id\":\"https:\\\/\\\/okuvision.de\\\/en\\\/#\\\/schema\\\/person\\\/8c5876ce322b1d535e693245db31cc1b\"},\"headline\":\"Maintaining quality of life\",\"datePublished\":\"2025-12-01T13:50:49+00:00\",\"dateModified\":\"2026-05-21T11:47:42+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/okuvision.de\\\/en\\\/news\\\/experience-report-rp-ines\\\/\"},\"wordCount\":889,\"commentCount\":0,\"image\":{\"@id\":\"https:\\\/\\\/okuvision.de\\\/en\\\/news\\\/experience-report-rp-ines\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/okuvision.de\\\/wp-content\\\/uploads\\\/2025\\\/12\\\/AdobeStock_252852364_sw.webp\",\"articleSection\":[\"User Portraits\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/okuvision.de\\\/en\\\/news\\\/experience-report-rp-ines\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/okuvision.de\\\/en\\\/news\\\/experience-report-rp-ines\\\/\",\"url\":\"https:\\\/\\\/okuvision.de\\\/en\\\/news\\\/experience-report-rp-ines\\\/\",\"name\":\"Maintaining quality of life \u2013 Ines Wolf on RP & TES\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/okuvision.de\\\/en\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/okuvision.de\\\/en\\\/news\\\/experience-report-rp-ines\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/okuvision.de\\\/en\\\/news\\\/experience-report-rp-ines\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/okuvision.de\\\/wp-content\\\/uploads\\\/2025\\\/12\\\/AdobeStock_252852364_sw.webp\",\"datePublished\":\"2025-12-01T13:50:49+00:00\",\"dateModified\":\"2026-05-21T11:47:42+00:00\",\"author\":{\"@id\":\"https:\\\/\\\/okuvision.de\\\/en\\\/#\\\/schema\\\/person\\\/8c5876ce322b1d535e693245db31cc1b\"},\"description\":\"Ines Wolf (27) has relied on TES for years. She talks about her studies, everyday life, sport, and her personal RP strategy.\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/okuvision.de\\\/en\\\/news\\\/experience-report-rp-ines\\\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/okuvision.de\\\/en\\\/news\\\/experience-report-rp-ines\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/okuvision.de\\\/en\\\/news\\\/experience-report-rp-ines\\\/#primaryimage\",\"url\":\"https:\\\/\\\/okuvision.de\\\/wp-content\\\/uploads\\\/2025\\\/12\\\/AdobeStock_252852364_sw.webp\",\"contentUrl\":\"https:\\\/\\\/okuvision.de\\\/wp-content\\\/uploads\\\/2025\\\/12\\\/AdobeStock_252852364_sw.webp\",\"width\":1800,\"height\":1195,\"caption\":\"Patient image recreated with a model\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/okuvision.de\\\/en\\\/news\\\/experience-report-rp-ines\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/okuvision.de\\\/en\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Maintaining quality of life\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/okuvision.de\\\/en\\\/#website\",\"url\":\"https:\\\/\\\/okuvision.de\\\/en\\\/\",\"name\":\"Okuvision\",\"description\":\"\u2013 Sehen erhalten\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/okuvision.de\\\/en\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/okuvision.de\\\/en\\\/#\\\/schema\\\/person\\\/8c5876ce322b1d535e693245db31cc1b\",\"name\":\"Melanie Broll\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/ac571fa56fb7caf06fa0a3b99fbe83e949790cb8ce1b8cf70eba98e70e26bd7a?s=96&d=mm&r=g\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/ac571fa56fb7caf06fa0a3b99fbe83e949790cb8ce1b8cf70eba98e70e26bd7a?s=96&d=mm&r=g\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/ac571fa56fb7caf06fa0a3b99fbe83e949790cb8ce1b8cf70eba98e70e26bd7a?s=96&d=mm&r=g\",\"caption\":\"Melanie Broll\"},\"url\":\"https:\\\/\\\/okuvision.de\\\/en\\\/news\\\/author\\\/melanie-broll\\\/\"}]}<\/script>\n<!-- \/ Yoast SEO Premium plugin. -->","yoast_head_json":{"title":"Maintaining quality of life \u2013 Ines Wolf on RP & TES","description":"Ines Wolf (27) has relied on TES for years. She talks about her studies, everyday life, sport, and her personal RP strategy.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/okuvision.de\/en\/news\/experience-report-rp-ines\/","og_locale":"en_US","og_type":"article","og_title":"Maintaining quality of life","og_description":"Ines Wolf (27) has relied on TES for years. She talks about her studies, everyday life, sport, and her personal RP strategy.","og_url":"https:\/\/okuvision.de\/en\/news\/experience-report-rp-ines\/","og_site_name":"Okuvision","article_published_time":"2025-12-01T13:50:49+00:00","article_modified_time":"2026-05-21T11:47:42+00:00","og_image":[{"width":1800,"height":1195,"url":"https:\/\/okuvision.de\/wp-content\/uploads\/2025\/12\/AdobeStock_252852364_sw.webp","type":"image\/webp"}],"author":"Melanie Broll","twitter_card":"summary_large_image","twitter_misc":{"Written by":"Melanie Broll","Est. reading time":"4 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/okuvision.de\/en\/news\/experience-report-rp-ines\/#article","isPartOf":{"@id":"https:\/\/okuvision.de\/en\/news\/experience-report-rp-ines\/"},"author":{"name":"Melanie Broll","@id":"https:\/\/okuvision.de\/en\/#\/schema\/person\/8c5876ce322b1d535e693245db31cc1b"},"headline":"Maintaining quality of life","datePublished":"2025-12-01T13:50:49+00:00","dateModified":"2026-05-21T11:47:42+00:00","mainEntityOfPage":{"@id":"https:\/\/okuvision.de\/en\/news\/experience-report-rp-ines\/"},"wordCount":889,"commentCount":0,"image":{"@id":"https:\/\/okuvision.de\/en\/news\/experience-report-rp-ines\/#primaryimage"},"thumbnailUrl":"https:\/\/okuvision.de\/wp-content\/uploads\/2025\/12\/AdobeStock_252852364_sw.webp","articleSection":["User Portraits"],"inLanguage":"en-US","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/okuvision.de\/en\/news\/experience-report-rp-ines\/#respond"]}]},{"@type":"WebPage","@id":"https:\/\/okuvision.de\/en\/news\/experience-report-rp-ines\/","url":"https:\/\/okuvision.de\/en\/news\/experience-report-rp-ines\/","name":"Maintaining quality of life \u2013 Ines Wolf on RP & TES","isPartOf":{"@id":"https:\/\/okuvision.de\/en\/#website"},"primaryImageOfPage":{"@id":"https:\/\/okuvision.de\/en\/news\/experience-report-rp-ines\/#primaryimage"},"image":{"@id":"https:\/\/okuvision.de\/en\/news\/experience-report-rp-ines\/#primaryimage"},"thumbnailUrl":"https:\/\/okuvision.de\/wp-content\/uploads\/2025\/12\/AdobeStock_252852364_sw.webp","datePublished":"2025-12-01T13:50:49+00:00","dateModified":"2026-05-21T11:47:42+00:00","author":{"@id":"https:\/\/okuvision.de\/en\/#\/schema\/person\/8c5876ce322b1d535e693245db31cc1b"},"description":"Ines Wolf (27) has relied on TES for years. She talks about her studies, everyday life, sport, and her personal RP strategy.","breadcrumb":{"@id":"https:\/\/okuvision.de\/en\/news\/experience-report-rp-ines\/#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/okuvision.de\/en\/news\/experience-report-rp-ines\/"]}]},{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/okuvision.de\/en\/news\/experience-report-rp-ines\/#primaryimage","url":"https:\/\/okuvision.de\/wp-content\/uploads\/2025\/12\/AdobeStock_252852364_sw.webp","contentUrl":"https:\/\/okuvision.de\/wp-content\/uploads\/2025\/12\/AdobeStock_252852364_sw.webp","width":1800,"height":1195,"caption":"Patient image recreated with a model"},{"@type":"BreadcrumbList","@id":"https:\/\/okuvision.de\/en\/news\/experience-report-rp-ines\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/okuvision.de\/en\/"},{"@type":"ListItem","position":2,"name":"Maintaining quality of life"}]},{"@type":"WebSite","@id":"https:\/\/okuvision.de\/en\/#website","url":"https:\/\/okuvision.de\/en\/","name":"Okuvision","description":"\u2013 Sehen erhalten","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/okuvision.de\/en\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"},{"@type":"Person","@id":"https:\/\/okuvision.de\/en\/#\/schema\/person\/8c5876ce322b1d535e693245db31cc1b","name":"Melanie Broll","image":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/secure.gravatar.com\/avatar\/ac571fa56fb7caf06fa0a3b99fbe83e949790cb8ce1b8cf70eba98e70e26bd7a?s=96&d=mm&r=g","url":"https:\/\/secure.gravatar.com\/avatar\/ac571fa56fb7caf06fa0a3b99fbe83e949790cb8ce1b8cf70eba98e70e26bd7a?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/ac571fa56fb7caf06fa0a3b99fbe83e949790cb8ce1b8cf70eba98e70e26bd7a?s=96&d=mm&r=g","caption":"Melanie Broll"},"url":"https:\/\/okuvision.de\/en\/news\/author\/melanie-broll\/"}]}},"_links":{"self":[{"href":"https:\/\/okuvision.de\/en\/wp-json\/wp\/v2\/posts\/2139","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/okuvision.de\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/okuvision.de\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/okuvision.de\/en\/wp-json\/wp\/v2\/users\/10"}],"replies":[{"embeddable":true,"href":"https:\/\/okuvision.de\/en\/wp-json\/wp\/v2\/comments?post=2139"}],"version-history":[{"count":7,"href":"https:\/\/okuvision.de\/en\/wp-json\/wp\/v2\/posts\/2139\/revisions"}],"predecessor-version":[{"id":2377,"href":"https:\/\/okuvision.de\/en\/wp-json\/wp\/v2\/posts\/2139\/revisions\/2377"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/okuvision.de\/en\/wp-json\/wp\/v2\/media\/808"}],"wp:attachment":[{"href":"https:\/\/okuvision.de\/en\/wp-json\/wp\/v2\/media?parent=2139"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/okuvision.de\/en\/wp-json\/wp\/v2\/categories?post=2139"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/okuvision.de\/en\/wp-json\/wp\/v2\/tags?post=2139"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}