{"id":2148,"date":"2025-12-11T10:07:25","date_gmt":"2025-12-11T09:07:25","guid":{"rendered":"https:\/\/okuvision.de\/news\/erfahrungen-mit-rp-okustim-anja-renner\/"},"modified":"2026-04-30T12:16:05","modified_gmt":"2026-04-30T10:16:05","slug":"experiences-with-rp-okustim-anja-renner","status":"publish","type":"post","link":"https:\/\/okuvision.de\/en\/news\/experiences-with-rp-okustim-anja-renner\/","title":{"rendered":"Patient Story &#8211; Anja Renner"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><p>[vc_row unlock_row_content=&#8221;yes&#8221; row_height_percent=&#8221;0&#8243; override_padding=&#8221;yes&#8221; h_padding=&#8221;0&#8243; top_padding=&#8221;0&#8243; bottom_padding=&#8221;0&#8243; back_color=&#8221;color-206913&#8243; overlay_alpha=&#8221;50&#8243; gutter_size=&#8221;3&#8243; column_width_percent=&#8221;100&#8243; shift_y=&#8221;0&#8243; z_index=&#8221;0&#8243; content_parallax=&#8221;0&#8243; uncode_shortcode_id=&#8221;126459&#8243; back_color_type=&#8221;uncode-palette&#8221;][vc_column width=&#8221;1\/1&#8243;]\n<div id=\"cvc-hero_image-6ab1a50feb80b\" class=\"cvc-element cvc-hero-image cvc-hero-image--violet cvc-hero-image--headline-hl-xl cvc-hero-image--text-large cvc-pattern-top-right-pattern cvc-pattern-bottom-left-pattern\" role=\"region\" aria-label=\"&quot;I refuse to give up&quot; \u2013 Experiences with Retinitis pigmentosa (RP) &amp; OkuStim\u00ae\">\n    \n    <!-- Background Patterns -->\n            <div class=\"cvc-hero-image__pattern cvc-hero-image__pattern--left\" aria-hidden=\"true\"><\/div>\n                <div class=\"cvc-hero-image__pattern cvc-hero-image__pattern--right\" aria-hidden=\"true\"><\/div>\n        \n    <!-- Content Container (max-width, centered) -->\n    <div class=\"cvc-hero-image__container\">\n        \n        <div class=\"cvc-hero-image__inner\">\n            <div class=\"cvc-hero-image__content\">\n                \n                                    <div class=\"cvc-hero-image__meta\">\n                                                                            <span class=\"cvc-hero-image__meta-item cvc-hero-image__meta-date\">\n                                11. December 2025                            <\/span>\n                                            <\/div>\n                                \n                                                        <h1 class=\"cvc-hero-image__headline font-714446 fontsize-431854\">\n                        &quot;I refuse to give up&quot; \u2013 Experiences with Retinitis pigmentosa (RP) &amp; OkuStim\u00ae                    <\/h1>\n                                \n                <div class=\"cvc-hero-image__text-wrapper\">\n                                            <div class=\"cvc-hero-image__text-content text-lead\">\n                            <p>Paratriathlete Anja Renner openly shares her life with RP and her experiences with OkuStim\u00ae therapy \u2013 honest, relatable, encouraging.<\/p>\n                        <\/div>\n                                        \n                                    <\/div>\n                \n                                    <div class=\"cvc-hero-image__categories\">\n                                                    <span class=\"oku-pill\">User Portraits<\/span>\n                                            <\/div>\n                                \n            <\/div>\n            \n            <!-- Image (breaks out to right edge) -->\n                            <div class=\"cvc-hero-image__image\">\n                    <img width=\"2125\" height=\"1430\" src=\"https:\/\/okuvision.de\/wp-content\/uploads\/2025\/12\/Anja_Renner_Profil_quer_sw.png\" class=\"attachment-full size-full\" alt=\"Paratriathletin Anja Renner l\u00e4chelt\" loading=\"lazy\" decoding=\"async\" srcset=\"https:\/\/okuvision.de\/wp-content\/uploads\/2025\/12\/Anja_Renner_Profil_quer_sw.png 2125w, https:\/\/okuvision.de\/wp-content\/uploads\/2025\/12\/Anja_Renner_Profil_quer_sw-300x202.png 300w, https:\/\/okuvision.de\/wp-content\/uploads\/2025\/12\/Anja_Renner_Profil_quer_sw-1024x689.png 1024w, https:\/\/okuvision.de\/wp-content\/uploads\/2025\/12\/Anja_Renner_Profil_quer_sw-768x517.png 768w, https:\/\/okuvision.de\/wp-content\/uploads\/2025\/12\/Anja_Renner_Profil_quer_sw-1536x1034.png 1536w, https:\/\/okuvision.de\/wp-content\/uploads\/2025\/12\/Anja_Renner_Profil_quer_sw-2048x1378.png 2048w, https:\/\/okuvision.de\/wp-content\/uploads\/2025\/12\/Anja_Renner_Profil_quer_sw-350x236.png 350w, https:\/\/okuvision.de\/wp-content\/uploads\/2025\/12\/Anja_Renner_Profil_quer_sw-uai-720x485.png 720w, https:\/\/okuvision.de\/wp-content\/uploads\/2025\/12\/Anja_Renner_Profil_quer_sw-uai-1032x694.png 1032w\" sizes=\"auto, (max-width: 2125px) 100vw, 2125px\" \/>                <\/div>\n                    <\/div>\n        \n    <\/div>\n    \n<\/div>\n\n\n[\/vc_column][\/vc_row][vc_row row_height_percent=&#8221;0&#8243; override_padding=&#8221;yes&#8221; h_padding=&#8221;2&#8243; top_padding=&#8221;3&#8243; bottom_padding=&#8221;3&#8243; overlay_alpha=&#8221;50&#8243; gutter_size=&#8221;3&#8243; column_width_percent=&#8221;100&#8243; shift_y=&#8221;0&#8243; z_index=&#8221;0&#8243; content_parallax=&#8221;0&#8243; uncode_shortcode_id=&#8221;154820&#8243;][vc_column width=&#8221;1\/1&#8243;][vc_custom_heading text_font=&#8221;font-714446&#8243; text_size=&#8221;fontsize-914237&#8243; text_weight=&#8221;300&#8243; uncode_shortcode_id=&#8221;621957&#8243;]Why patient stories matter \u2013 and what they cannot provide[\/vc_custom_heading][vc_row_inner][vc_column_inner column_width_percent=&#8221;100&#8243; gutter_size=&#8221;3&#8243; overlay_alpha=&#8221;50&#8243; shift_x=&#8221;0&#8243; shift_y=&#8221;0&#8243; shift_y_down=&#8221;0&#8243; z_index=&#8221;0&#8243; medium_visibility=&#8221;yes&#8221; medium_width=&#8221;0&#8243; mobile_visibility=&#8221;yes&#8221; mobile_width=&#8221;0&#8243; width=&#8221;1\/3&#8243; uncode_shortcode_id=&#8221;131905&#8243;][\/vc_column_inner][vc_column_inner width=&#8221;2\/3&#8243;][vc_column_text text_lead=&#8221;yes&#8221; uncode_shortcode_id=&#8221;141257&#8243;]When someone receives a diagnosis of Retinitis pigmentosa (RP) or another hereditary retinal disease, they seek answers \u2013 but often, above all, people who have already walked this path. Patient stories provide encouragement, offer practical ideas for everyday life, and help contextualize decisions not just &#8220;on paper,&#8221; but in real life.<br \/>\nEqually important is the boundary: every story is an individual case. What helps Anja or Moritz may not work for everyone. Medical decisions belong in clinical consultation \u2013 patient stories do not replace diagnostics or clinical guidelines.[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row][vc_row row_height_percent=&#8221;0&#8243; override_padding=&#8221;yes&#8221; h_padding=&#8221;2&#8243; top_padding=&#8221;3&#8243; bottom_padding=&#8221;3&#8243; back_color=&#8221;color-206913&#8243; overlay_alpha=&#8221;50&#8243; gutter_size=&#8221;3&#8243; column_width_percent=&#8221;100&#8243; shift_y=&#8221;0&#8243; z_index=&#8221;0&#8243; content_parallax=&#8221;0&#8243; uncode_shortcode_id=&#8221;206492&#8243; back_color_type=&#8221;uncode-palette&#8221;][vc_column column_width_percent=&#8221;100&#8243; gutter_size=&#8221;3&#8243; overlay_alpha=&#8221;50&#8243; shift_x=&#8221;0&#8243; shift_y=&#8221;0&#8243; shift_y_down=&#8221;0&#8243; z_index=&#8221;0&#8243; medium_width=&#8221;0&#8243; mobile_width=&#8221;0&#8243; width=&#8221;1\/1&#8243; uncode_shortcode_id=&#8221;867860&#8243;][vc_custom_heading text_font=&#8221;font-714446&#8243; text_size=&#8221;fontsize-914237&#8243; text_weight=&#8221;300&#8243; uncode_shortcode_id=&#8221;168111&#8243;]Anja Renner \u2013 Usher syndrome,<br \/>\nparatriathlon and perseverance<sup>1<\/sup>[\/vc_custom_heading][vc_row_inner][vc_column_inner column_width_percent=&#8221;100&#8243; gutter_size=&#8221;3&#8243; overlay_alpha=&#8221;50&#8243; shift_x=&#8221;0&#8243; shift_y=&#8221;0&#8243; shift_y_down=&#8221;0&#8243; z_index=&#8221;0&#8243; medium_visibility=&#8221;yes&#8221; medium_width=&#8221;0&#8243; mobile_visibility=&#8221;yes&#8221; mobile_width=&#8221;0&#8243; width=&#8221;1\/3&#8243; uncode_shortcode_id=&#8221;287397&#8243;][\/vc_column_inner][vc_column_inner width=&#8221;2\/3&#8243;][vc_custom_heading heading_semantic=&#8221;h3&#8243; text_size=&#8221;h3&#8243; uncode_shortcode_id=&#8221;127342&#8243;]From shock to resolve: &#8220;I&#8217;m not giving up&#8221;[\/vc_custom_heading][vc_column_text uncode_shortcode_id=&#8221;210109&#8221;]Anja Renner has been hearing impaired since birth. At age 25, she receives the diagnosis of Usher syndrome \u2013 a condition affecting both hearing and vision. Vision gradually declines due to Retinitis pigmentosa. Years later, she describes: <i>&#8220;Today I see only about 10% of what most people see.&#8221;<\/i> Instead of resigning, she formulates her personal counter-strategy: not giving up, adapting step by step, staying mentally strong.<sup>1<\/sup>[\/vc_column_text][vc_custom_heading heading_semantic=&#8221;h3&#8243; text_size=&#8221;h3&#8243; uncode_shortcode_id=&#8221;277457&#8243;]Competitive sports with less than 10% residual vision[\/vc_custom_heading][vc_column_text uncode_shortcode_id=&#8221;206645&#8243;]Anja finds a platform for this mindset in paratriathlon. With a guide, she rides tandem, trains with focus, and plans her races meticulously. Those who follow her sense: it is about self-determination \u2013 not about denying difficulties. Training is her compass; she speaks openly about setbacks and the feeling of constantly reinventing herself.<sup>1<\/sup>   <\/p>\n<p>&#8220;The diagnosis was a shock that pulled the ground out from under my feet. But I refused to give up.&#8221; \u2013 Anja Renner<sup>1<\/sup>[\/vc_column_text][vc_custom_heading heading_semantic=&#8221;h3&#8243; text_size=&#8221;h3&#8243; uncode_shortcode_id=&#8221;132613&#8243;]What Anja shares with others[\/vc_custom_heading][vc_column_text uncode_shortcode_id=&#8221;143047&#8243;]<\/p>\n<ul>\n<li>Allow acceptance, maintain activity. The disease may be acknowledged \u2013 and yet there is room for action every day.<sup>1<\/sup> <\/li>\n<li>Bring your support network on board. Guides, family, friends \u2013 those who share the burden make new paths possible.<sup>1<\/sup> <\/li>\n<li>Define success for yourself. Sometimes &#8220;success&#8221; is a good training day, sometimes a smart plan B.<sup>1<\/sup> <\/li>\n<\/ul>\n<p>[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_custom_heading text_font=&#8221;font-714446&#8243; text_size=&#8221;fontsize-914237&#8243; text_weight=&#8221;300&#8243; uncode_shortcode_id=&#8221;171238&#8243;]What many patients experience similarly \u2013<br \/>\ncommon patterns[\/vc_custom_heading][vc_row_inner][vc_column_inner column_width_percent=&#8221;100&#8243; gutter_size=&#8221;3&#8243; overlay_alpha=&#8221;50&#8243; shift_x=&#8221;0&#8243; shift_y=&#8221;0&#8243; shift_y_down=&#8221;0&#8243; z_index=&#8221;0&#8243; medium_visibility=&#8221;yes&#8221; medium_width=&#8221;0&#8243; mobile_visibility=&#8221;yes&#8221; mobile_width=&#8221;0&#8243; width=&#8221;1\/3&#8243; uncode_shortcode_id=&#8221;287397&#8243;][\/vc_column_inner][vc_column_inner width=&#8221;2\/3&#8243;][vc_custom_heading heading_semantic=&#8221;h3&#8243; text_size=&#8221;h3&#8243; uncode_shortcode_id=&#8221;290076&#8243;]Emotions &amp; mindset: Between grief, anger, and hope[\/vc_custom_heading][vc_column_text uncode_shortcode_id=&#8221;152208&#8243;]The patient story typically begins with a shock: the moment when it becomes clear that something fundamental about vision is no longer as it was. From shock emerges resolve: &#8220;I refuse to give up&#8221; (Anja). This is not about &#8220;everything is fine,&#8221; but rather the decision to keep moving forward \u2013 with the disease, not against life.<sup>1<\/sup>  <\/p>\n<p>Practical translation<\/p>\n<ul>\n<li>Allow what is there (frustration, grief) \u2013 and create space for hope.<\/li>\n<li>Think of success in small terms: arriving more safely today, testing a new routine, one less obstacle.<\/li>\n<li>Activate your social network: guides, family, colleagues \u2013 do not carry everything alone.<sup>1<\/sup><\/li>\n<\/ul>\n<p>[\/vc_column_text][vc_custom_heading heading_semantic=&#8221;h3&#8243; text_size=&#8221;h3&#8243; uncode_shortcode_id=&#8221;197215&#8243;]Everyday life &amp; tools: From edge filters to app-based guidance[\/vc_custom_heading][vc_column_text uncode_shortcode_id=&#8221;156714&#8243;]Structure helps. Fixed training or therapy times, clear routines, tools that are truly usable. For some, this means edge filters and good lighting; for others, digital assistants, orientation aids, text-to-speech apps, voice output, zoom functions, or consistent contrast design in the workplace. What matters is not the &#8220;perfect&#8221; solution, but the right one \u2013 today, for this everyday life.<sup>1<\/sup>[\/vc_column_text][vc_custom_heading heading_semantic=&#8221;h3&#8243; text_size=&#8221;h3&#8243; uncode_shortcode_id=&#8221;737015&#8243;]Medicine &amp; therapy: Why standardization in follow-up care helps[\/vc_custom_heading][vc_column_text uncode_shortcode_id=&#8221;897712&#8243;]Which approach or routine makes sense for individual patients always belongs in a clinically supervised setting: suitability, current intensity, frequency, follow-up examinations (e.g., visual field, OCT) \u2013 everything is planned there. Experiences cannot be transferred one-to-one, but they provide starting points for good questions in consultation with the physician. <\/p>\n<p>Key point: Patient stories complement medicine. They do not replace medical decisions.<sup>1<\/sup>[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row][vc_row row_height_percent=&#8221;0&#8243; override_padding=&#8221;yes&#8221; h_padding=&#8221;2&#8243; top_padding=&#8221;3&#8243; bottom_padding=&#8221;3&#8243; overlay_alpha=&#8221;50&#8243; gutter_size=&#8221;3&#8243; column_width_percent=&#8221;100&#8243; shift_y=&#8221;0&#8243; z_index=&#8221;0&#8243; content_parallax=&#8221;0&#8243; uncode_shortcode_id=&#8221;178231&#8243;][vc_column width=&#8221;1\/1&#8243;][vc_custom_heading text_font=&#8221;font-714446&#8243; text_size=&#8221;fontsize-914237&#8243; text_weight=&#8221;300&#8243; uncode_shortcode_id=&#8221;116870&#8243;]Frequently asked questions from the community (FAQ)[\/vc_custom_heading][vc_accordion typography=&#8221;advanced&#8221; sign=&#8221;plus&#8221; gutter_simple=&#8221;0&#8243; heading_semantic=&#8221;h3&#8243; titles_size=&#8221;h4&#8243; cvc_color_scheme=&#8221;violet&#8221; cvc_background_color=&#8221;light-gray&#8221; uncode_shortcode_id=&#8221;108876&#8243; active_tab=&#8221;999&#8243;][vc_accordion_tab gutter_size=&#8221;2&#8243; column_padding=&#8221;2&#8243; title=&#8221;&quot;Does this mean I can no longer do sports with RP?&quot;&#8221; tab_id=&#8221;1759218556287-4-4176460612869881764677093229&#8243;][vc_row_inner][vc_column_inner width=&#8221;1\/1&#8243;][vc_column_text uncode_shortcode_id=&#8221;684042&#8243;]No. Anja&#8217;s journey shows: sports remain possible, often with adaptations \u2013 e.g., with a guide in paratriathlon, planned training, clear risk management. It is important to realistically assess your own capacity and coordinate with the treatment team.<sup>1<\/sup>[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][\/vc_accordion_tab][vc_accordion_tab gutter_size=&#8221;2&#8243; column_padding=&#8221;2&#8243; title=&#8221;&quot;How do I talk to my environment about my visual impairment?&quot;&#8221; tab_id=&#8221;1764606518222-5-051764677093229&#8243;][vc_row_inner][vc_column_inner width=&#8221;1\/1&#8243;][vc_column_text uncode_shortcode_id=&#8221;127080&#8243;]Openness in measured steps helps: say what you need (e.g., tandem, more light, clear contrasts), and also what does not help. Many people want to support \u2013 they need concrete guidance.<sup>1<\/sup>[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][\/vc_accordion_tab][vc_accordion_tab gutter_size=&#8221;2&#8243; column_padding=&#8221;2&#8243; title=&#8221;&quot;What do I do when I am going through a low point?&quot;&#8221; tab_id=&#8221;1764606571712-6-421764677093229&#8243;][vc_row_inner][vc_column_inner width=&#8221;1\/1&#8243;][vc_column_text uncode_shortcode_id=&#8221;729142&#8243;]Both stories show: low points are part of the journey. Small steps, reliable routines, people who walk alongside \u2013 these provide support. And: seeking professional counseling (e.g., rehabilitation counseling, psychotherapy) is strength, not weakness.<sup>1<\/sup>[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][\/vc_accordion_tab][\/vc_accordion][\/vc_column][\/vc_row][vc_row row_height_percent=&#8221;0&#8243; override_padding=&#8221;yes&#8221; h_padding=&#8221;2&#8243; top_padding=&#8221;3&#8243; bottom_padding=&#8221;3&#8243; overlay_alpha=&#8221;50&#8243; gutter_size=&#8221;3&#8243; column_width_percent=&#8221;100&#8243; shift_y=&#8221;0&#8243; z_index=&#8221;0&#8243; content_parallax=&#8221;0&#8243; uncode_shortcode_id=&#8221;178231&#8243;][vc_column width=&#8221;1\/1&#8243;][vc_separator sep_color=&#8221;color-183551&#8243; uncode_shortcode_id=&#8221;577203&#8243; sep_color_type=&#8221;uncode-palette&#8221;][vc_custom_heading heading_semantic=&#8221;h6&#8243; text_size=&#8221;h4&#8243; uncode_shortcode_id=&#8221;963787&#8243;]References[\/vc_custom_heading][vc_column_text text_lead=&#8221;small&#8221; uncode_shortcode_id=&#8221;505528&#8243;]1 Renner A. Paratriathlon &amp; Living with Usher syndrome. Personal website. www.anja-renner.com. Last accessed: December 2025.[\/vc_column_text][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>Paratriathlete Anja Renner openly shares her life with RP and her experiences with OkuStim\u00ae therapy \u2013 honest, relatable, encouraging.<\/p>\n","protected":false},"author":10,"featured_media":1634,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[179],"tags":[],"class_list":["post-2148","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-user-portraits"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.9 (Yoast SEO v27.9) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Patient Story - Anja Renner - Okuvision<\/title>\n<meta name=\"description\" content=\"Real experiences with Retinitis pigmentosa: paratriathlete Anja Renner. 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